{Helping Hearts} Alex

I am very privileged to be part of Helping Hearts it  is an amazing project with the goal of offering free photography sessions for families with children who are suffering a life-altering illness or disability. Check out their site here.

Meet Alex and his family. Alex has Menkes disease. He started out with seizures as an infant and was given until his first birthday. He is now 18.5 months old. A daily miracle for his family!:)

I spent a lovely warm evening with this loving family!~the Dad wears the symbol tattooed on his neck for Menkes....Alex did amazing and showed us his gorgeous eyes and even laid on the blanket by himself without getting upset.:) Wishing your family all life's blessings!

Menkes disease (MNK), also called Menkes syndrome, copper transport disease, steely hair disease, kinky hair disease, or Menkes kinky hair syndrome,[1][2] is a disorder that affects copper levels in the body,[3] leading to copper deficiency.[4] It is an x-linked recessive disorder, and is therefore considerably more common in males: females require two defective alleles to develop the disease.